My Diary - week 6
Friday 26 Sep
Went for a hearing test at the hospital. The Specialist said I was the best
behaved baby she'd seen all week ! But sadly it seems that my hearing is not too
good , so Mum & Dad were a bit upset. In the evening we went to see Auntie
Annie & Uncle Steve, I was a good boy, we had a lovely meal and a very nice time. Tomorrow
Auntie Jojo is coming to see me - all the way from Ireland...!
Saturday 27 Sep
Got up & had a bath so I would be nice & clean to meet Jojo for the first time. Her plane arrived about lunchtime but while Dad was on his way to the airport I forgot to breathe a couple of times. Mum got a bit scared. I perked up when Jo arrived though, she bought me some lovely presents and gave me some excellent cuddling. I put on my best clothes & had my photo taken with her...
Sunday 28 Sep
Had a bad night forgetting to breathe again, Mum, Dad & Jo were all worried about me. At 5am I had a long apneoa attack and they thought they'd lost me. Daddy had to give me a special kiss, and then Mummy cuddled me on her chest for a long time, until I felt a bit better. Got up around 10am and gave Jojo a big smile, and then slept in my cot while they got lunch ready. We all went to the airport together in the evening - Daddy will be going back to work there on Tuesday, so it'll just be me & Mummy at home. Everyone is worried in case my breathing gets worse from now on. We also found out that my favourite nurse, Lucy, won't be looking after me any more! I'm really really sad, cos I like her so much, and so do Mum & Dad. In the evening we talked to a very nice lady from SOFT, which is a support organisation for families affected by this condition.